Comprehensive Care for Spinocerebellar Ataxias: A Multidimensional Approach to Enhance Patient Well-Being and Functional Independence
Keywords:spinocerebellar ataxias, ataxias care, multidimensional approach, quality of life, disease management, neurological disorders
This study examined a patient-specific multidimensional Spinocerebellar Ataxias (SCA) treatment. SCs are progressive neurodegenerative disorders with many issues. Since there is no cure, a comprehensive therapy that addresses motor and non-motor symptoms and improves quality of life is needed. Mixed-method research used quantitative and qualitative methods. Pre- and post-intervention evaluations were done on 50 SCA patients. Functional capacities, quality of life, and psychological pain were quantified. In-depth interviews yielded qualitative participant experiences. Standardized tests, questionnaires, and in-depth interviews collect data. The multidimensional care model is customized using baseline and post-intervention evaluations. SPSS (version 27) was used to analyze pre- and post-intervention results. This study demonstrates multimodal care improves SCA patients. With SARA and ADL Scale scores falling, functional capacities improved dramatically, with p-values below 0.001. EQ-5D/SF-36 Physical Health scores became significantly higher (p-values <0.001). Psychological distress decreased, with substantial decreases in HADS Anxiety and Depression (p-values <0.001). From 85% to 94%, patients are satisfied with medical care, physical therapy, psychological assistance, social services, and total care. The current study strongly supports multifaceted SCA care. This integrative therapy improves motor symptoms, emotional and social well-being, and quality of life. The study supports patient-centered, multimodal neurodegenerative disease treatment. Future research must include larger and more diverse participant groups to evaluate and refine this promising strategy and examine its long-term durability.
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